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Congenital and Childhood Myotonic Dystrophy Research Survey: Instrument for Children Ages 5 to 7 (CCMD-HI 5-7)
This is a disease-specific Patient-reported outcome measure for patients with congenital, childhood-onset, or juvenile myotonic dystrophy type-1. This instrument was developed and validated through the outcome measures laboratory at the University of Rochester and based on original questions developed for adult myotonic dystrophy patients (also see...
Published: 8/14/2023   |   Inventor(s): Chad Heatwole, Nicholas Johnson, Joanna Heatwole
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Category(s): Copyright, Informatics, Research Tools